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Shelley Ross, president of the Cure Alliance, asks FDA to role back regulations

YOUR CURE ALLIANCE AT WORK

Cure Alliance President Shelley Ross Asks FDA to Eliminate Restrictions on Breast Cancer Reconstruction from New Guidelines on Fat Transfer

Thank you for the invitation to speak today as president of The Cure Alliance, a non-profit group of leading translational researchers, surgeons, innovators and those who support our efforts to end human suffering by curing chronic, debilitating and fatal diseases. Our number one goal is to eliminate barriers to discovery and accelerate potential cures from the lab to the bedside. I am...

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How much of these $50 crystal earrings goes to breast cancer causes? Zero.

Please Think Before You Go Pink

It's my least favorite time of year: October and its onslaught of pink ribbons, the great con on the American public who believe  by buying "pink" products they are advocating in the fight against breast cancer. I have earned the right to protest as a long-time investigative  journalist, a breast cancer survivor and the president of The Cure Alliance, a non-profit  organization  of top scientists, researchers, medical doctors and innovators, plus those who support their efforts to end suffering by developing cures for chronic,...

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Heidi Williams

Fixing Patent Laws to Cure Disease? Why, It’s Genius!

MIT Economist Heidi Williams Wins MacArthur Foundation "Genius" Grant for Exposing Invisible Barriers to Cures Since its creation, The Cure Alliance has pointed to the need to reform patent laws as a key barrier to curing disease.  We have exposed the three-year backlog in the U.S. Patent Office, the issue of over-reaching patents that serve as toll booths for scientists  and the practice of "patent-blocking" (see CellR4 2015: 3(4);e1620.) Now, the MacArthur Foundation has put a spotlight on some invisible  barriers...

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SCOTUS Backs Obama on Health Exchanges

The Supreme Court has ruled 6-3 in favor of the Obama administration on Affordable Care Act tax credits Thursday morning, in the case of King v. Burwell. By affirming the Fourth Circuit Court's ruling, the Supreme Court decided that people who obtain health insurance through the federal exchange will be eligible for tax credits, despite attempts by the law's foes to claim that this is not specified in the law. Chief Justice Roberts wrote the opinion of the court, with...

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Former FDA Chief is Wrong About 21st Century Cures Act

Last week  David A. Kessler,  commissioner of the F.D.A. from 1990 to 1997, came out in opposition to the 21st Century Cures Act, a bi-partisan bill that promises to modernize the FDA and NIH and accelerate the pace of curing chronic, debilitating and fatal diseases.  Kessler argues that passage of the bill "would lower standards for the approval of many medical products and potentially place patients at unnecessary risk." How can Kessler invoke "risk" when most of the patients clamoring for...

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The Road to the 21st Century Cures Act: a Photo Essay from the Chairman

In the beginning... Michigan’s Brook and Brielle Kennedy, Chairman Upton’s inspiration, drew a picture of “the key to cures” ahead of the Health Subcommittee vote on the 21st Century Cures Act. Over the past two weeks, the Cures initiative has moved through the Energy and Commerce Health Subcommittee and full committee, enjoying momentum from a continued flood of support. For more than a year, committee members have brought patients, innovators, care givers, regulators, researchers, and other thought leaders to the table...

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The Cure Alliance on the move.

Cure Alliance Goes to Washington D.C. for 21st Century Cure Vote

(May 21, 2015 Washington, D.C.) The Cure Alliance issued a statement of support today after the  House Energy and Commerce Committee voted unanimously (51-0) to pass the 21st Century Cures Act. Cure Alliance president Shelley Ross congratulates the Committee leaders on their unanimous vote (51-0). “Today’s unanimous vote sends a loud and clear message that it’s time to unravel the red tape, free up the funds and give our federal agencies the tools they need to keep pace with the...

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Road to Cystic Fibrosis Cure Discussed

from today's Medpage DENVER -- The "Mile High City" will be: the setting for the American Thoracic Society 2015 International Conference, which gets underway this weekend. The conference will bring together clinicians, researchers, public health experts, and educators for the latest in pulmonary, critical care, and sleep medicine. Another high point will be the President's Symposium, which is entitled "How to Cure a Disease: The Cystic Fibrosis Story." Presented on Sunday afternoon, the symposium will be moderated by ATS President Thomas Ferkol...

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Cuba Has a Lung Cancer Vaccine

More To Cuba than Vintage Cars
this article is from the current issue of  Wired CUBA HAS FOR several years had a promising therapeutic vaccine against lung cancer. The 55-year trade embargo led by the US made sure that Cuba was mostly where it stayed. Until—maybe—now. The Obama administration has, of course, been trying to normalize relations with the island nation. And last month, during New York Gov. Andrew Cuomo’s visit to Havana, Roswell Park Cancer Institute finalized an agreement...

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Cards We Wish We Got When Battling Life Threatening Disease

Cancer Survivor Nails It With "Awkward" Empathy Cards
Los Angeles–based designer Emily McDowell was diagnosed with Stage 3 Hodgkin’s lymphoma at age 24 and went through nine months of chemo and radiation before going into remission. She says the worst part wasn't losing her hair or being called "sir" by a Starbucks baristas, but  “the loneliness and isolation I felt when many of my close friends and family members disappeared because they didn’t know what to say, or said the...

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